'I Find Myself Very Seriously Feeling Hollow': Documenting A Pandemic Experience | WAMC

'I Find Myself Very Seriously Feeling Hollow': Documenting A Pandemic Experience

May 30, 2020
Originally published on May 30, 2020 8:00 am

At 85, Margaret Sullivan felt that she had a comfortable life and was being well taken care of in a retirement home in Northern Virginia.

"Living in a bubble," she said.

But then she shared a piece of sad news: "My brother died about two weeks ago of the virus."

He lived a few states away.

"I'm the oldest and he's the youngest," she explained. "And that's outside the order of things."

For many, the pandemic has been long days of juggling kids and work. Worrying about money. Trying to schedule grocery deliveries.

But for Sullivan, the virus brings with it thoughts of mortality.

The octogenerian lives at Goodwin House in Bailey's Crossroads, Va., and has been documenting all the ways the coronavirus pandemic has shut down life around her.

The first glimpse of things to come was on Feb. 28.

"Overnight, the Purell bottles stationed everywhere grew signs, 'Don't take me home. I'm for everyone,'" she recalled.

Left: A staff member has her temperature taken upon arrival at the Goodwin House in Bailey's Crossroads, Va. on March 16. Right: Reminders about safety protocols on April 1.
Margaret Sullivan

A few days later, salt and pepper shakers disappeared from dining rooms, "in an abundance of caution."

On March 12, the "lockdown" as she calls it, began.

Residents were not to leave, and no outsiders could come in — which meant, no more visits from her daughter, who lives five miles away.

"We are being extraordinarily well taken care of, but we are also being carefully harbored," Sullivan said during a phone call on April 2.

As many as 1 in 4 people age 85 and older who are infected with the virus die, according to early research.

"We are vulnerable," Sullivan said in April. "I think the youngest of us is in their late 60s. And the oldest of us — there are 500 or so of us — is 100 and something."

She and her husband had recently updated their will, fixing married names of their children.

"You need to be sure that the documents that the kids would need to have are in order," she said, a few minutes before ending the call. "And so we're going downstairs to find the notary."

"This is something I've seen"

Sullivan describes herself as a rolling stone. She was born in China, and her father was a doctor of public health in parasitology. When the rumblings of World War II began, 6-year-old Sullivan moved back to the U.S. with her family. Later, when she was in high school, the family moved to Burma (now Myanmar), then India, where she graduated from high school. She ended up in Washington, D.C., for college. And then she got married.

"'We joined the Foreign Service — he was the only one who got paid," she said with a laugh. "So we've lived around the equator and raised kids around the equator."

Sullivan says this life, hopping from country-to-country in Asia and Africa with four kids in tow, put her in the path of a number of epidemics. In the 1970s, the family was living in Sierra Leone while the Lassa Fever was raging there. The Centers for Disease Control and Prevention sent a team to collect blood samples of sick people — and those infected samples were stored in Sullivan's refrigerator.

"Until the next plane came through and they went back to Atlanta," she said.

Then there was the time they were living in Nigeria: "All three of the kids got mumps the day I was supposed to host a big party. I mean, everybody has these stories."

A long life, much of it lived abroad, gives Sullivan perspective on the current pandemic, of both perspective of time, and geography.

"There is a sense in which this is new and startling and different, and much more concerning. But there's another sense in which this is something I've seen in a different way. I don't know whether it makes me more comfortable or less comfortable."

"Life turned on its head"

Sullivan is a writer, and has written books about her globetrotting life. Now, she's writing about — and recording — her life under lockdown.

"Life sort of turned on its head here late Wednesday afternoon," begins a recording from April 11. A letter had arrived, outlining new social distancing restrictions.

Left: Margaret's husband, Dan, with a takeaway meal on April 6. Right: The masked couple inspecting menus on April 21; meals must be ordered two days in advance, and are now delivered to each resident, to limit contact.
Margaret Sullivan

Weeks earlier, the dining rooms at Goodwin House had converted to takeaway service only, with residents waiting 6 feet apart to pick up food. Now, the letter said, meals would be delivered and left outside each resident's door.

In the recording, there's a knock.

"And there comes my lunch. Just a minute," Sullivan said, putting down the recorder with a clunk. She catches up with the staff member who delivered the meal. "Well, it's more fun when we can go downstairs and pick it up and chat with you."

In another recording, she's interrupted by her husband, Dan.

"You came back to get your mask? OK. Here it is," she said, as he puttered in the background. "Dan, it needs to go over your nose."

The Sullivans have been married for 65 years. He's 91, and has mid-stage Alzheimer's. As the patterns of daily life change during the pandemic, Dan's confusion increases. There are many more conversations about where everyday objects are than there were just a few weeks ago.

"He's good about picking up and taking things to the sink," Sullivan said. "I may have to remind him that the sink is where the sink is."

"There's a bog and I'm caught in it"

Sullivan jokes about the situation, and she keeps busy — scheduling Zoom calls with her kids and grandkids. But lately, there's a sense of gravity settling in.

"I find myself very seriously feeling hollow. It just sort of — there's a bog and I'm caught in it," she says in a recording from April 18.

There's also the day — April 8 — when Sullivan ends her recording this way: "Today's my brother's birthday, and he isn't here for me to call. And so my heart breaks a bit on that, too."

"Zooming on Sunday night with number one son, Jerry (who is a professor of anthropology at Collin Collage in Texas) and his wife Phillipa who live in McKenney, Texas," writes Margaret. "We are talking with each of our four kids (adult children) this way. And having drinks with friends sometimes."
Margaret Sullivan

She reads the news each morning — the papers are being delivered by a cadre of volunteers in the building — and struggles to find the right word, as nursing homes around the country are overtaken by deaths from COVID-19.

"I won't say that life is terrifying," she said. "I haven't quite found the right word for what it is. But it certainly is concerning."

Now that she and Dan have updated their will, they're working on a living will.

"I had never thought that I would want to write down 'Do not ventilate,'" Sullivan said. "There are other people who need them more, and I have had a good life. And so I think that's what we'll do."

One of 100,000

In late April, the retirement home where Sullivan lives had its first confirmed case of the coronavirus. All the residents had to get tested.

"The swab goes up your nose. It doesn't hurt very much," Sullivan said. "Everybody sort of held their breath a bit 'til you get the results."

Sullivan says nine people tested positive, and two of them died. It made her very aware, she said, of the world of risk she lives in.

Then, last weekend, the Sunday New York Times came — the edition marking 100,000 deaths in the United States. The front page is nothing but names of the dead — six columns in small print.

"We brought it in and as we always do, there was coffee and the paper," she said. "I knew he had to be there."

She found her brother's name halfway down the first column. Like each name, it was followed by a tiny obituary — a whole life condensed into four words.

"For Ted, they said that he 'could make anything grow.' And he could," Sullivan said.

She wasn't able to be with her brother when he died and has no idea if or when the family will be able to get together to cry, and tell stories about him. Instead it's all online. Sullivan folded the newspaper, circled Ted's name in red ink, took a photo, and posted it on Facebook.

Copyright 2020 WAMU 88.5. To see more, visit WAMU 88.5.

SCOTT SIMON, HOST:

If you scan any set of statistics about the coronavirus pandemic, you'll see that people over 85 are most at risk. They also make up a significant number of the fatalities with senior homes being hot spots for infection. What's it like to live with that kind of risk? Jacob Fenston with member station WAMU has spent the past couple of months getting to know an 85-year-old woman in Northern Virginia, and he brings us her story.

JACOB FENSTON, BYLINE: Margaret Sullivan lives in a retirement home high-rise just outside D.C. It's been on lockdown, as she calls it, since mid-March. No visitors and no one's supposed to leave.

MARGARET SULLIVAN: We are being extraordinarily well taken care of, but we are also being carefully harbored.

FENSTON: The first time we talked on the phone, she told me maybe she wasn't a good fit for my reporting project. After all, she had a comfortable life with her husband, nothing remarkable. A few minutes later, she told me this.

M SULLIVAN: My brother died about two weeks ago of the virus.

FENSTON: He was her younger brother, 72 and lived a few states away.

M SULLIVAN: I'm the oldest, and he's the youngest. It's outside the order of things.

FENSTON: For me, the pandemic has been about long days, juggling kids and work. But for Margaret, the virus brings with it thoughts of mortality. It was nearly time to get off the phone.

You said you had to go at 10:30.

M SULLIVAN: Well, I have to go in a few more minutes. We...

FENSTON: OK.

M SULLIVAN: This is another one. You need to be sure that the documents that the kids would need to have are in order. And so we're going downstairs to find the notary to sign a change of names in a will.

(SOUNDBITE OF PHONE RINGING)

M SULLIVAN: Good morning. How are you?

FENSTON: About a week later.

M SULLIVAN: I'm fine. How are the kids?

FENSTON: When we talk, Margaret genuinely seems to want to know about my kids.

M SULLIVAN: One of the things we miss here now is that other people's grandchildren are not coming in.

FENSTON: After chatting about family, I asked Margaret to describe herself. She answered this way.

M SULLIVAN: I'm a rolling stone. I was born in China. My father was a doctor of public health in parasitology. I lived there until I was 6. And the war started or was going to start and we came back to the United States.

FENSTON: The war being World War II. Later, when she was in high school, the family moved to Burma, then India. She moved to D.C. for college. She got married.

M SULLIVAN: We joined the Foreign Service. He was the only one who got paid.

FENSTON: She says they lived and raised kids around the equator, hopping from country to country in Asia and Africa. Margaret says that life put her in the path of a number of epidemics from Lassa fever to Ebola.

M SULLIVAN: There is a sense in which this is new and startling and different and much more concerning. But there is another sense in which this is something I've seen, and I don't know whether it makes me more comfortable or less comfortable.

FENSTON: I asked Margaret to record her thoughts and experiences from inside the lockdown.

(SOUNDBITE OF ARCHIVED RECORDING)

M SULLIVAN: You came back to get your mask.

DAN SULLIVAN: Yeah.

FENSTON: In this recording, her husband, Dan, interrupts her looking for his mask.

(SOUNDBITE OF ARCHIVED RECORDING)

M SULLIVAN: OK. Here it is.

FENSTON: Margaret is a writer. She's written books about her globetrotting life. Now she's documenting her life under lockdown, things like teaching Dan to wear a mask.

(SOUNDBITE OF ARCHIVED RECORDING)

M SULLIVAN: Dan, it needs to go over your nose.

FENSTON: Margaret and Dan have been married for 65 years. He's 91 and has mid-stage Alzheimer's. Margaret says as the patterns of daily life change, his confusion increases.

M SULLIVAN: He's good about picking up and taking things to the sink. I may have to remind him that the sink is where the sink is.

FENSTON: Margaret jokes about the situation, and she keeps busy scheduling Zoom calls with her kids and grandkids. But as the weeks drag on, heaviness settles in.

M SULLIVAN: I find myself very seriously feeling hollow. It just sort of - there's a bog, and I'm caught in it.

FENSTON: There's the day April 8 when she ends her recording this way.

(SOUNDBITE OF ARCHIVED RECORDING)

M SULLIVAN: Today's my brother's birthday, and he isn't here for me to call. And so my heart breaks a bit on that, too.

FENSTON: In late April, the retirement home where Margaret lives had its first coronavirus case. All the residents had to get tested.

M SULLIVAN: The swab goes up your nose. It doesn't hurt very much, but they did it for everybody. And everybody sort of held their breath a bit till you get the results.

FENSTON: Margaret says nine people tested positive, two of them died. It made her very aware, she says, of the world of risk she lives in. Then last weekend, the Sunday New York Times came, the edition marking 100,000 deaths in the United States.

M SULLIVAN: And I just knew.

FENSTON: The front page six columns of names in small print.

M SULLIVAN: We brought it in as we always do. There was coffee and the paper. And I knew he had to be there.

FENSTON: She found her brother's name halfway down the first column. Like each name, it was followed by a tiny obituary, a whole life condensed into four words.

M SULLIVAN: For Ted, they said that he could make anything grow. And he could.

FENSTON: For NPR News, I'm Jacob Fenston. Transcript provided by NPR, Copyright NPR.